Friday, October 2, 2026

#242 Parkinson's Disease and 9/11 in Scotland


 Photo Notes: Besides a few photos relating to the story the rest of the photos are from two of my older files of Birds and Bridges.

Anne at the River Tay bridge in Dunblane, 
Scotland.

Wood Duck Take-off




“Fun” Facts about Parkinson’s  Disease


Okay, maybe they are not “fun,” but at least they are not all bad news. Here are several positive, encouraging, or interesting notes about PD:

Bridge in the Birks of Aberfeldy Park, Scotland.

The Churchill Barriers were built to block German U-boats and create a safe bridge between several of the Orkney Islands.

A different than normal view shows the old packhorse bridge and the new car bridge at Carrbridge, Scotland.



One of the unusual conditions or symptoms of PD is that sufferers will often have significantly more bouts with hiccups than non-suffers. I notice that I have seven or eight hiccups in a session and have sessions more frequently than before. It’s not causing any problems, but it’s just rather strange. I couldn’t find any reasons for it, but one source did say as many as 40% of PDers will notice the increase.

I believe salmon is on the menu tonight.

Red Grouse, Scottish Highlands



The research into Parkinson’s causes and treatments is increasing rapidly through major contributors such as the National Institute for Health ($259 million lsat year, an increase of more than $50 million), The Michael J. Fox Foundation ($101 million), the Parkinson’s Foundation ($40 million), and the American Parkinson’s Disease Association (more than $4 million). The spending is making a difference with new discoveries and developments in areas such as brain stem cell research, DBS (Deep Brain Surgery), medications and other treatments, and links to causes of PD. 

Crooked River High Bridge, Central Oregon

Nuthatch, Lake Louise, Alberta, Canada



On a more personal level I am learning to how my main medication (Carbidopa/Levodopa) works to control my symptoms.  Levodopa works to replace levels of dopamine, thereby alleviating symptoms. The problem is that it takes a period of time, usually 20-45 minutes, for the effect to kick in, which is called “On.” The time it takes effects to wear off and the time it takes to build up is called “Off.” I find that I stay On with my dosage for about three hours, therefore my life becomes an hour Off, three hours On, an hour Off, three hours On, etc. For instance, if I want to drive someplace or do some activity, I really want to do it during an On period. I know some of you are thinking, “Why doesn’t he just take more meds during his Off period and stay covered?” Ah, if only Levodopa worked that way. You see, Levodopa has some limits—take too much and nasty side -effects can happen. It’s easier to live on a schedule than to fight more symptoms. So, if I seemed overly agitated or shaky or moody, it may only be an Off time on what is otherwise a good day. [Or it could be an Off time on a bad day, duh.]

Tidal Path to St Michael's Mount, Cornwall, England

Gen. Wade's Bridge (1733) over the Tay River, Aberfeldy, Scotland.



Before PD I had been a voracious reader, but Parkinson’s has changed that. I’ve gone through a period of almost being a non-reader because of problems such as difficulties focusing and double vision. One writer described it this way: “Low dopamine levels affect eye muscle coordination, processing in the brain, and blinking rates.” These are really just a few of the common eye problems brought on by or made worse by Parkinson’s. 

PD sufferers face the possibilities of dry eyes caused by reduced blinking which is normally an autonomic function. Not with Parkinson’s. A person can also have watery eyes caused by reduced blinking rates and those watery eyes aren’t getting properly lubricated, just irritated. Lack of muscle control makes it difficult to focus on close objects which results in double vision. I may read a good book a second time, but I don’t enjoy doing it as I read it the first time. Slowed eye movement makes tracking of lines of text difficult. I can read a couple of paragraphs in a book before the lines start to wiggle or blend together.  

My eye doctor has now got me into a new pair of glasses called prism glasses which are supposed to help with eye alignment issues. It’s too soon to tell how effective these will be for me, but I’m hopeful.

"Who you lookin' at?" says Mr Osprey.

Wild turkeys in our Canby front yard.
    



On the first Monday of the month I join with other Parkinson’s patients and care givers as we share stories and information about our symptoms and treatments. This sharing has very positive effects as we see that we aren’t alone in our battle with PD. For me, the group support is the best way to boost spirits and help others. I sincerely suggest that anyone facing serious health challenges seek the support of fellow sufferers and offer support to all who seek it.

Trail to Upper Butte Creek falls, Oregon.

A slab bridge in Dartmoor Nat'l Park, England.



25 Years Ago — A 9/11 STORY


In 2001 we arrived in Glasgow on September 4th to begin our second Scotland trip. We started out by visiting Ayrshire, poet Robert Burns country, and proceeded to spend our first five days playing golf, visiting castles, and touring the Isle of Arran on the west coast of Scotland. It was glorious vacationing with good weather on fine golf courses like the unique Shiskine Golf Club on Arran. We discovered great accommodations like Doonbrae B&B in Alloway and Kilmichael Guest House, the oldest house on Arran. On the 8th we moved from Oban in the west to Crieff between Stirling and Perth in central Scotland at the foot of the highlands. In Crieff we stayed  at Merlindale B&B, an excellent accommodation we found on our first trip in September 2000. 


Merlindale B&B


In our first couple of days at Crieff we played the Ferntower Course in town and a course , Crail Golfing Society, in St Andrews. We also visited two abbeys and a castle in our non-golfing time.


This brings me to September 11, 2001. Breakfast was the normal Full Scottish with porridge, fried eggs, bacon, tomato, mushrooms, toast, fruit, and coffee—we hardly ever needed to eat lunch, though we did. While eating we had a pleasant visit with Nick from South Africa, and Sandy from Zimbabwe, who were only staying the one night while we were just starting a 20 day stay at Merlindale B&B. Today was a touring day in the Perth area with our first stop at a Foulis Wester kirk to see a Pictish cross (probably from the 13th century). On our way into Perth we visited Huntingtower Castle (1500s). Then in Perth we toured Balhousie Castle which houses the Blackwatch regimental museum. It was interesting to view all the history and regalia of this famous fighting unit. The third castle of the day was Elcho Castle which overlooks the Tay River. We were intrigued by all the mason marks carved into the castles stones by the builders.  Mason marks are like brands etched into the stone bricks used by the mason who cut the stones. On the way back to Crieff we also toured Caithness Glassworks and viewed an interesting demonstration of glass blowing.


The Cliffords - John, Jacky, Jonathan, and Ailsa


It was a little after two in the afternoon when we arrived back at our B&B in Crieff. We went to the front door and we opened it to find Angeles, the family’s helper from Spain, breathlessly saying, “America has been attacked!” We quickly joined John and Jacky Clifford and Angeles in the TV lounge in time to see the second plane hit the South Tower of the World Trade Center in New York. With all kinds of wild emotions—shock, fear, anger, worry—we were glued to the TV the rest of the afternoon. My notes in my daily journal read, “It’s hard to recount the fun we had, the wonderful things we saw, when in the background are the reports of tragedy. Life goes on, but there will be a pall over the rest of our trip.” We joined the Merlindale family for a traditional Scottish dinner of neeps and tatties—minced meat, potatoes, and turnips. After a late dinner Anne and I took some time to process what it all meant for the rest of our trip and the future. The best way to show the effect the terrorist attack had on us is to share my actual journal entry for September 12, 2001:





“9-12-2001. It was hard to get started today. We took an early walk downtown, then had breakfast, and figured out what we wanted to do. Thoughts of New York, DC, and Pennsylvania kept us from being too excited about anything. We finally decided that we didn’t want to mess with any cities, so we chose to go the small towns of Dunblane and Callander.

On the way to Dunblane  we first stopped at Tullibardine Chapel. 




It was a lovely old church ruin set amongst trees and farms. The setting was particularly somber with rain and mists swirling around the chapel. Very fitting for the day’s mood. We next drove by Gleneagles Resort with three golf courses. We drove by because it was raining so hard we didn’t get out. We did watch golfers looking miserable and hitting awfully in the driving rain and forty mile per hour winds. Almost all who find we are from the States express their sorrow for us and we are beginning to see American flags in many windows—the Scottish newspapers printed a big one in the morning edition.

The third stop of the day was the Dunblane Cathedral—what a find! A marvelous old church belonging to the Church of Scotland—beautiful inside and out. A local church member directed us to a stone monument dedicated to the kindergarten teacher and her 16 students who were gunned down in the school gym by a crazy—what a waste. The experience added to the depressed feelings caused by the New York tragedy. A former teacher who worked in the church told us the story of the shooting and also gave us directions to our next spot.

Tourists and Reindeer use a bridge across the marshy areas in Cairngorm National Park, Scotland.

Gannet



Next was the castle at Doune—a fantastic old castle with full courtyard. Many rooms were still in excellent shape. We’ve started watching for freemason marks since we learned about them at a little abbey on Fife. We saw several here. We stopped for lunch at the Myrtle Inn, a small hotel on the outskirts of Callander. Lunch was a very nice Autumn Veg soup (carrot, leek, celery, turnip) and toastie (toasted sandwich). There was an older lady (obviously special needs) also eating lunch. After a while she asked if we were American and then expressed her sorrow. It was a touching gesture—an effort on her part. She later let me take her picture. Callander is a resort town so we walked around a little and bought a few things.

On our way home we ventured a few miles off the main route to find the grave of Rob Roy McGregor in a small churchyard at Balquitter. Back at home, Merlindale, we went with John, Jacky, and Jonathan (10 years old) to play the nine-hole Dornock course at Crieff. It’s the original James Braid course.  A wonderful course. John and Jacky get all their golf (both courses) for $300 a year with no monthly dues. It’s unbelievable—less than we pay for a month at our club. Dinner was a family affair—Jacky and Anne picked up take-out—pizza and fish and chips. It was fun and comforting to be sitting around the table with friends who are now family.”

Bridgehouse, Ambleside, England

Beep. Beep!




After 9-11 we were truly adopted by Scotland and made 33 more trips to our second home until stopped by Covid and Parkinson's in 2019.




NEXT:  Two more 9/11 related notes and I’ll also see if I can find something unique.

 

Thursday, August 27, 2026

#241 Parkinson's Sleep Disorders and Doors and Windows

#241    Parkinson’s Sleep Disorders and Doors and Windows 


Fountains Abbey, Yorkshire, England

St Francis of Assis Church, Taos NM



Sleep is a window through which we see our mind’s dream world. Sleep is a door to the mind’s adventures. Since this post’s Parkinson’s topic is sleep disorders associated with the disease, pictures of windows and doors seem appropriate. And if that is a stretch too far just sleep on it.


A door no more in Glencoe, Scotland.

Church window in Foulis Wester, Scotland



Parkinson’s Disease and Sleep Disorders


Both the Parkinson's Foundation and the Michael J. Fox Foundation place the number of PD suffers who face various sleep problems at 75%. This number is very important because those of us with PD need more time to repair and restore our battered bodies. There are several sleep issues that typically affect those with PD:


What are they smoking in Santa Fe, NM.?

Cafe window, Edinburgh



1. Difficulty falling and staying asleep affects about one-third of the adult population and is significantly higher in the PD population. Caused by anxiety and depression along with other non-motor symptoms of the disease, this affliction progresses as the disease progresses.


A door for the narrow minded.

Acorn Gardens, England



2. Excessive daytime sleepiness affects 30-50% of those diagnosed with PD. A natural effect of poor nighttime sleep, the condition is also a side affect of several of the drugs used to treat PD. In extreme cases patients will be affected by “sleep attacks” where they can fall asleep almost instantaneously, even while driving a car.


St Andrews Cathedral

Looking out a Falkland Palace window.



3. REM (Rapid Eye Movement) Sleep disturbances. The deepest of our sleeping, the time when the mind is most actively dreaming is called REM sleep. Natural inhibitors freeze  movements of most people in REM sleep, but PD interferes with those inhibitors allowing the Parkinson’s sufferer to act out, sometimes violently, the dream. Typical activities while in REM sleep will be talking or shouting, thrashing in bed, and flailing or striking out. Anyone within range can become a target. Those who suffer with REM disturbances will often feel better sleeping alone rather than cause injury to a partner. Caused by advancing disease progression and by certain drugs, REM sleep disorder is no sweet dream.


The door is always open, Bandelier National Monument, NM.

Window in the Door, Scandinavian Village, Aviemore, Scotland.



4. Restless Leg Syndrome (RLS) affects a high percentage of PD sufferers. Mostly occurring at night, RLS is an uncomfortable feeling in the legs that only is resolved by moving them.  When RLS strikes there’s no fighting it—if it says move that leg, you move it. I’ve spent many nights trying to get to sleep or back to sleep between twitches of feet, ankles or legs seconds or minutes apart. There is medication available but the side affects can be worse than the loss of sleep.


A Kissing Gate

Watches get my attention every  time, York, England.



These four difficulties don’t cover all the sleep problems a PDer might face, but as for me I’ve had a taste of all of them. I now sleep most nights in my living room recliner because I get more sleep there than in bed. I found myself fighting waking up at 3 AM and not being able to go back to sleep pattern. RLS and problems turning over in bed were my nemesis —turning over in bed for me was like being a potato wrapped in a velcro suit trying to roll over on a bed of velcro spikes. Now I normally sleep until four or five in the morning before my RLS kicks in. I have had several very vivid dreams where I was giving speeches and I woke up to find I was giving speeches. Only once have I awakened pounding my pillow—once was enough to scare both Anne and myself. I don’t know if my daytime sleepiness is excessive, but I can sit down in my  recliner at any time and fall asleep--especially as soon as golf comes on. I guess most people would do that. I do find it easy to want a nap any time of day.


Open Close.

Window Pooh



The solutions for these sleep disturbances are basically the same for a Parkinson’s patient as for any adult: stick to a schedule, limit caffeine to early in the day, shut down the visual stimulus early, etc. The trouble is the effectiveness of these solutions still leaves us up at 3 AM wondering what might work. Want a good night’s sleep with Parkinson’s? Dream on!


Choosing between the Window and the Door is Hell.

Santa Fe Window



Extra, extra, extra: borborygmi is the medical term for the squeaks, pops, and gurgles your stomach make especially when you’re in a crowded but quiet social situation. 


“I live in a very small house, but my windows look out on a very big world.”

—Confucius


It's amazing what you can see in St Andrews' shop window. Do you see us in the photo?




“Look on every exit as being an entrance somewhere else.”

—Tom Stoddard


The first step's a killer!



“Better keep yourself clean and bright, you are the window through which you must see the world.”

—George Bernard Shaw